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December 2009
A few days before Braxton’s surgery, we got dressed up and
headed to a local park with our sweet friend, Candice. She took
the below family pictures for us. Check out her site at
www.picturesforapurpose.com Her
passion for the orphan and her desire to help others is
contagious. We had a blast with her that day and we were so
happy to get a spiffy, new family picture.
On December 1, 2009, we headed on our 3-hour drive to Shriners
Hospital for Braxton’s anticipated surgery. On December 2, we
met with the Child Life Specialists and the Surgeons. We were
all ready for the big day. The surgery went well. It was longer
than we/they expected. They ran into a few medical anomalies
when they got in there as they found that he had no knee joint
and what had looked like a knee was a condensed ball of
cartilage. They also did not see an obvious, clear growth plate
in the knee area. The doctors plan to write up a case study in
the medical journal as his leg again was unlike any they have
ever seen. So he technically had an above the knee amputation
and his stump is very short.
The first night was very hard as once the nerve block wore off,
he was in severe pain. With the pain came fear unlike any other
I have seen. I looked into his eyes and saw my little boy in
outrageous pain frosted with utter panic and fear. His eyes
darted in terror and his body trembled with agony. He could not
form words and he flailed his arms in the direction of his right
femur. His oxygen saturation dropped to the 70s and he turned
ashen. His nurse quickly flew out the door to retrieve some
additional pain medication (the big guns) to place in Braxton’s
IV. I asked Braxton if he would like for me to pray for him as I
really had no idea what else I could do. Evidently the nerve
blocker had worn off and our room was full of the demons of
pain, fear, and uncertainty. Braxton shook his head “Yes” I
prayed as Braxton tried to gain self-control. His eyes were full
of angst and worry while his body was assaulted by the ugly
monster called pain.
As the nurse came back into the room, he worked rapidly like an
experienced superhero not getting his cape caught in any of the
monitors and medical equipment. Soon strong pain medication was
fighting its way up through Braxton’s IV tubing and into his
veins. I stroked Braxton’s cheek and whispered comforting words
into his ears. He looked deep into my eyes and I could see that
he was looking to me for the strength that he was battling to
find. As his eyes locked with mine, I knew that as he needed
courage, faith, hope, and love reflected back to him. In the
dark and cold of this hospital room, I needed to trust Jesus in
this moment so that Braxton could find comfort in my resolve.
Though the atmosphere was chaotic and even scary, I dug deep and
boldly told Braxton that everything was going to be okay. I
reminded him that we could trust Jesus and that Jesus would hold
him closely in his arms to get him through this difficult time.
Braxton’s eyes continued to lock with mine and I could see the
courage begin to seep into him. He began to settle and the
crying ceased. Like a soldier confidently loading and preparing
his gun for battle, Braxton grabbed his little flashlight and
clicked it on. He reached for his favorite soft, comforting
stuffed animal, MingMing the monkey. He clutched his blanket and
confidently put his oxygen mask back on. He sat there in the
dark of the night with me and with his little flashlight in his
hand beaming light into the dark room, he said with resolve, “I
am going to be brave.” Despite my best efforts, tears rebelled
and came rushing down my face. I kissed him on the forehead and
said, “Yes, buddy! Jesus is here with us and this is hard...but
you can choose to be brave. You can feel frightened and you can
be in pain and you can still be brave. I am so proud of you!” It
was a rough night, but one that I will never forget. In the dark
of the night, Braxton learned to trust Jesus to a whole new
level. |

Our Team

Love

What a Great Group of Kids

Working with Child Life Specialist Just Prior to Surgery

Braxton (after receiving happy juice)
and Daddy Just Prior to Surgery

Braxton Recovering from Surgery |
Braxton is in a body cast and
cannot move all that much. But, his spirits are light. We were
able to come home two days after surgery and he was so thrilled
to see his siblings. He is eager to get moving again. He seems
to be adjusting to the condition of his leg and looks forward to
running one day with “a prosthetic and two shoes”. Braxton has
experienced some serious phantom pain as his nerves and brain
work out the new situation. He has had some pain here at home
but we keep focusing on the goal and dream with him of the day
he will walk and maybe even run. We head back to Shriners in
several weeks. They will then take off the cast and remove the
nylon stitches. They prepared us that this may be a difficult
procedure as it will be painful and he will also be seeing his
leg stump for the first time. That same day, we will meet with
the prosthetics guys and they will begin to fit him for his
first prosthetic that will be complete with a working knee and
ankle. That will be exciting! They hope to have him up and going
in 6-9 weeks. I will be sure to report back soon.
Anticipating the victory while we endure the recovery,
Tamera |
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