We're Home
May 28, 2009  |  June 19, 2009  |  September 8, 2009  |  October 18, 2009  |  January 3, 2010  |  April 12, 2010  |  June 6, 2010

Friday, June 19, 2009 **Welcome Home Open House**                July 18th    2 - 6 pm                    At Lilli's House We have been very busy since we have been home. Lilli has been adjusting very well. This week she went back to the pediatrician where we got some lab reports back. Good news--she is rid of all intestinal parasites, so we shouldn't have any more surprises! All the other tests came back normal which means she is healthy. She had two shots so far and we are awaiting more test results to see if her vaccinations from China took. Lilli did great until the nurse and doctor came in. Let's just say that Cheerio's and other treats only distracted her a little...yes, she screamed most of the visit, to the point that the doctor had a difficult time hearing her heart. He did say he could hear a mild murmur (which we knew about from the China medical reports) and had referred us to a pediatric cardiologist at Hope Children's Hospital. On June 17th, we went to get her echocardiogram at Hope Children's Hospital. We knew this wasn't going to be easy, seeing as if Lilli is scared of strangers and it's scary, I'm sure, to have electrodes and wires on your chest. She screamed and was inconsolable for at least 15 minutes when the technician tried to do the echocardiogram. It was a VERY stressful visit, to the point, the medical staff thought we'd have to make another appointment to sedate her. So we held rocked her in the dark room, and after about a half hour we tried again. This time Julie laid across her shoulders with her blanket covering what the technician was doing and Aaron (the entertainer) played the "drop the sock of the table and pick it up" game. Lilli did much better and then Dr. Griffin (cardiologist) got a good view of her heart. Dr. Griffin gave us fabulous news--he said he has no worries about Lilli's heart and that we had a lot to be thankful for. While she still has the hole in her heart, it is smaller than a year ago in, so it is taking care of itself. He said Lilli does not need surgery and said she has no physical restrictions or limitations. He said he'd just like to monitor her over time. He predicts that the hole will continue to close over time and if it doesn't, we probably won't need to do anything until she is about 20 years old. Lilli is healthy!! Our prayers have been answered. Other than doctors visits, Lilli has progressed nicely. She is a great eater, and loves pancakes! In fact, she will eat most meals we fix for ourselves. She sleeps throught the night, only waking if she has a wet diaper or if she needs to be covered. She will now let us rock her in the rocking chair--which has been such a blessing on our arms and legs! She looks at Flower and says "Woo-Woo" (her version of "Woof Woof)--it's very cute. She has learned the sign for "more" (and uses it when she wants to) and we taught her a sign for "swallow". This sign she has mastered which is very good, because she would just want us to shovel food in her mouth which wasn't good. She also has mastered the best kisses in the world and has the cutest pucker!

Pretty in Pink Silly singing fish at Doctor's Office Relaxing with Mom and Flower Sweet and Sour face So scared at Cardiology appointment

Having fun with Dad

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