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January 8, 2008  January 9, 2008  January 10, 2008 #1  January 10, 2008 #2 & #3  January 11, 2008  January 12, 2008  January 13, 2008  January 15, 2008  January 24, 2008  April 2, 2008

 
January 13, 2008

Today was BETTER!!! Sarah ate well today. I was feeling discouraged about yesterday and the agony of her emotional withdrawal and this morning began, at first, no differently. I offered her water and she turned away. I offered her bites of pudding and she turned away still more. Sitting by the side of her PICU bed I felt horrible. For her…..for me. And then, for some reason, sitting there leaning against the rail of her bed I was inspired to look over my shoulder. And laying down on the breakfast tray that had magically appeared in the corner of the room was a box of Cheerios. You know the kind, the ‘one bowl’ size? Anyhow, I thought….hmmm……..maybe, just maybe. Lo and behold, a tender mercy for a weary mom. She saw the box as I held it out to her and her eyes lit up. I held one single Cheerio up to her mouth and she eagerly opened up. After about 10 Cheerios, some water followed. Then some more Cheerios, one at a time until we advanced to two at a time. She ate a few bites of pudding. She drank some more water. An hour later, after my mom had arrived, she at a piece of cinnamon bread toast. I felt so aware that Heavenly Father knew of a mother and her daughter’s need in even the smallest detail. Prayers were answered that Sarah ate and she ate from her mama!

Other good news was that she no longer needed any ‘pacing’ from her cardiac pace wire and she had her mediastinal tube (in the very center of her chest about an inch below the incision) taken out. Yahoo! The other two will hopefully be pulled tomorrow after an XRay can confirm that some fluid remaining in the space around her right lung has resolved. She has had every IV line but one removed and we were able to give her a more thorough bed bath tonight after they transferred us out of the PICU and onto the regular Pediatric floor. She is certainly making progress!

My heart still aches for her though and I must admit that I worry. Though she is responding with food now, she is still very ‘shut down’ emotionally. I have been unable to illicit a smile from her and, at times, she is unwilling to even look at me. I know to take it daily but, as I am sure you can understand, the days seem long when I miss my little girl’s radiant personality. She had been in such a delightful, fun and engaging mood the last few days before surgery that, looking back, I believe was a tender mercy again to us. I keep reflecting on that when I fret that this trauma is too much for her and I feel reassured that she is still there. To give her love, give her time and encouragement and it will be well again. I pray for it every day.

We have witnessed the very real suffering of others around us as we have been here at Doernbecher Children’s Hospital. We have seen sudden devastating diagnosis hit families, we have learned of tragic and premature deaths of children who had just begun to live and we have met dear people who have shared their hearts with us when their own hearts were hurting. Each person has blessed my life and taught me a little something more about how I want to live my life. The staff’s compassionate service to this little girl of ours has been nothing short of miraculous. I/we will forever hold them as treasures to our family. I believe in the goodness of people. I believe in a little girl who is overcoming some incredible obstacles to fulfill a purpose for her life and who has given us the opportunity to add more love into our life. Go to those you love and hug them…don’t waste another minute!

Until tomorrow…………

With love,

Anna



 


The blessed Cheerios!!


"I think I am going to be OK"


Looking better


Feeling a little yuck but headed for a wagon ride in the hallway


We said goodbye to the PICU.....


....and hello to Jenny in Pediatrics


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