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January 15, 2008

I must admit that I had to pause before I wrote the date…..is it really only the 15th of January? It feels like it must be March at least. But, here we are at last. Our precious little Sarah is being discharged tomorrow!!!!!!!! From a very rocky and scary start to her recovery to now she has blossomed and begun healing right before our very eyes. Prayers have been answered every step of the way. Tender mercies have been evident everywhere.

Sarah got the last of her chest tubes out today and her pacer wires removed. She had persisted in being very withdrawn with occasional breakthroughs with mom or grandma. Each and every nurse, CNA, lab tech, radiology tech, doctor….anyone medical….was greeted by a child who at best would keep her eyes closed and at worst, crying until they departed. Rich, the fabulous surgical PA (from the bleeding incident) came with Dr. Schoolfield to take out her tubes. Instant tears…..this mama just couldn’t bear to pin her little girl down ONE MORE TIME. Sarah was blessed with two nurses today so they came in with the dr.’s and I excused myself to stand right outside the door. That way I was a step away if something was wrong. She cried, she thrashed, I cried and then five minutes later they popped open that door and I got to rush in and scoop my baby up in my arms and immediately talk to her and soothe her and she responded by snuggling into me and slowing her cries and finally falling still. Heaven on earth to hold her close with tubes, without wires, without IV’s, without oxygen tubing. Heaven….on….earth!!!!!! The day just improved from there. We were able to wheel her down to the cafeteria in her wagon and she sat in a high chair and fed herself for the first time since surgery. When I placed the rice and beef in front of her she did the cutest thing. As soon as that plate was down she picked up her spoon and attempted to dig into the rice. Not wanting to wait for that procedure, she brought her face way down into the rice. She was so hungry and so excited to feed herself! My mom and I both got tears in our eyes. How far she has come already! Physical therapy and occupational therapy came and worked with her and helped us out. They are arranging the referral for services back home in Boise for which I am extremely grateful. We had great play time this afternoon and she had a long stretch of happy play with toys and WALKED between grandma and I. She is wobbly on her feet and we have to remember not to grab her under her arms but she is doing it!! I think some of the medications she is on is making her a little wired today but, it is pure bliss to see her awake and smiling at me. Nurse Bob from the PICU came for a visit today and it was a treat for us to have him see her awake and doing so much better.

I am so looking forward to being back together as a family. I cannot wait to bring her home and continue her healing journey there. Brian and the other kids have never been far from my thoughts and I have missed them terribly. I know Sarah has too. It has been a tremendous blessing to have my mom here. The hospital can be a very isolating place and it has been wonderful to have an extra set of hands and ears to help. She has been a rock for us and so sweet and tender to Sarah. Thanks mom!!!! We would love to see you all when we get home. It feels like we have been gone for a long time. Just remember to wait if you currently have any kind of cold and don’t be mad if I greet you at the door with hand sanitizer ☺ Truly we have been lifted by the prayers and love of all of you. Thank you from the bottom of our hearts. We are eternally grateful!!!!

Until then…………………

With love from Doernbecher Children’s Hospital in Portland, Oregon-

Anna


How the day started for Miss Sarah


Mama gets to rescue her from the docs...
we are both exhausted


The day brightens with no tubes
and the help of Barbie Giselle


Not wanting to let go of Mama's hand on the way to the cafeteria


Loving my first lunch out


Playing with grandma


A happy day after all....now can I go home???


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